NPaCa Quarterly Report January 2021 to December 2023 (published July 2024)

The purpose of the National Pancreatic Cancer Audit (NPaCA) is to evaluate the patterns of care and outcomes for patients with pancreatic cancer in England and Wales, and to support services to improve the quality of care for these patients. More details of the audit and scope can be found on our web page.

This quarterly report published by the NPaCA team provides an overview of the quality of key data items captured in the rapid cancer registration data for people diagnosed with pancreatic cancer in England between 1st January 2023 and 31st December 2023, at NHS trust and Cancer Alliance levels. A high-level summary of patient characteristics is also provided at NHS trust and Cancer Alliance levels.

From October these quarterly reports will report on performance indicators relevant to pancreatic cancer.

Click on the button below to download your copy of the Quarterly Report

NPaCA Quarterly Report, January 2021 to December 2023

Why have we focused on data completeness in this quarterly report?

We have initially focused on data completeness as this aspect of data quality underpins what we can reliably and robustly report as an audit. In England, NATCAN receives information from the National Cancer Registration and Analysis Service (NCRAS), part of the National Disease Registration Service (NDRS), NHS England. NDRS collects patient-level data from all NHS acute providers on people with cancer using a range of national data-feeds. This includes the Cancer Registration datasets and the Cancer Outcomes and Services Dataset (COSD). COSD data are submitted to the NDRS on a monthly basis via Multidisciplinary Team electronic data collection systems.

Data sources used in this report:

For this quarterly report, the NPaCA utilised data from the Rapid Cancer Registration Dataset (RCRD). This dataset is compiled mainly from COSD records and is made available more quickly than the complete cancer registration dataset. However, the speed of production means that the range of data items is limited and several standard data items in the complete registration dataset are unavailable. It also does not have complete coverage of all patients diagnosed with pancreatic cancer in England during the reporting period. For more information regarding the RCRD, including the data dictionary, visit the RCRD webpage maintained by NHS England.

This NPaCA report allocates records to NHS organisations based on the “trust at diagnosis” recorded within the RCRD dataset.

We encourage all provider teams to review their data completeness and make improvements as this will increase the number of patients we can include in analyses and increase the range of analyses we can conduct. By focusing exclusively on data completeness for this report, we are aiming to shine a spotlight on areas where improvements are needed.

What should a trust do if their data completeness is below target levels?

NDRS has regional Data Liaison Managers who support NHS teams submitting cancer data to NDRS with advice and support on data improvement initiatives. We encourage trusts to get in touch with this team for support and advice. Contact details are found here <hyperlink to: https://digital.nhs.uk/ndrs/data/data-sets/cosd#help-and-feedback>.

How have we chosen these specific data items to focus on?

Overall, the RCRD has very good data completeness and many variables are 100% complete across diagnoses; however, some variables have less than 100% completeness, and it is these variables that were selected for reporting. When analysing data quality, the NPaCA team recoded values as “missing” that would not be useful in practice and/or are not plausible values. For instance, values such as “not known”, “not specified”, or “not recorded” were considered to be missing, and implausible values such as performance status values other than 0-4 were considered to be missing.

For any queries relating to the audit, please email: [email protected]

 

Last updated: 11 July 2024, 9:50am